When Lucas was born, his head was pretty ginormous. Even after about 2 1/2 inches were taken off when Dr. Leonard placed his shunt and allowed large amounts of excess fluid to drain, he was still "off the chart" as far as "normal" head circumference is considered. That all has changed though.
Today he had his 9 month check up (though he'll be 10 months on Friday), and his head circumference is now considered to be in the 90-100th percentile. Still very large, but on the chart. That doesn't really mean anything medically, but I think it's exciting just the same. :)
In other news, I heard back from the neurologist's office yesterday and they said to go ahead and increase his 3rd dose of Tegretol as well, so now all three of his daily doses are up by 1/2mL. We are supposed to follow up with them in 2 weeks (or call earlier if we have any concerns). We are to continue using the Klonopin as needed (if he has a seizure lasting longer than 5 minutes or more than one in a day). We are back on the Klonopin now and will be through tomorrow afternoon. He has had 4 seizures today, 2 yesterday, 4 the day before that. Hopefully, his body will adjust to the new dosing and the seizures will stop. They only happen when he wakes up, not every time he wakes, but something about waking allows them to happen. I still haven't gotten back to the elliptical in the basement because I don't want to leave him, but I can get in some stretching and ab work in the living room so I don't feel like a total physical wastoid. :)
Now, he is sleepy and hungry and that means I'm on full duty. His Grandpa Mike arrives from Mexico tomorrow for a couple weeks, so we are looking forward to that. We'll try to get some more pictures up soon, maybe some video too, because he is the cutest boy in the world and everyone needs to keep up with his ravishing good looks.
Blessings and love to you all. Thanks for your prayers; please keep them up. God tells us to ask.
Esther (for Marc and Lucas)
2 comments:
I hope he'll still have super-human powers, even with his head measuring on the charts! Have you found any other parents who have a child with many similarities to Lucas? I remember there being one girl you told us about...how is she doing?
Once the weather gets nice, will you love going on walks with Lucas or what?!
dear precious baby boy,
God continues to use you as an avenue for miracles. We are so happy you have grown into your head I pray you just keep growing into your superhero costume as you grow up to save the world.
We love you here in Indiana
love
Hillary and Rudy
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