S'more

I took Lucas in to a lab yesterday to get his blood drawn to check his Tegretol level so that the neurologist can know how to adjust his meds. He was so brave, as always. He was asleep and awoke to feel the tourniquet tightening around his little arm. I think he hates that and the being held still more than the actual stick. He really hates being held still.

He had two more seizures yesterday morning so we started the Klonopin again. He had another seizure this morning too. I'll be calling the neurologist later today to see if they got the results of the blood work and to talk to them about any changes they may want us to make since he is still having so many seizures.

He is such a sweet little love. When he is having a seizure, he will often make sad whining sounds as though to say, "Please make this stop." As soon as it is over, he is a squealing joyful boy again and typically a hungry one at that. :P It is difficult enough to see him having these uncontrolled events, but to think that he is suffering at all in the process is heart wrenching, though I think it is more out of frustration that he is kept from doing what he wants to do.

He was chewing on fingers this morning and gagged himself bad enough to puke a little (which one might think he'd stop doing after he's done it a few times; the fingers can only go back so far! :P) and so now I'm off to bathe him.

Please, keep praying, for wisdom for the doctor about medication changes and especially, for Lucas to be healed.

Thanks for your love.