At least I have managed to hold back the tears every day of school this, Lucas' third, week of preschool. He seems to enjoy going quite a bit. His teachers and therapists seem to enjoy him as well. There have been a few hiccups as far as school goes, but we should have everything sorted by next week. His teacher was switched last minute and some of the therapies and goals which should have been included in his individualized education plan (IEP) were missing. There are only four children in his class and there is one teacher and three assistants. Physical, occupational and speech therapists are in the room a great deal and the vision therapist comes once a week.
As Lucas seems to enjoy school, it is also quite a jolt to his schedule. Most days he either sleeps late (and we are late to school) or falls asleep at school. Because of the importance of sleep in regard to his seizures, I've asked his team to let him sleep. It is a new experience to have 3 solid hours of working. At home we have never worked so much in a concentrated period of time.
With the schedule change, his entire homeostasis seems affected. His sleep schedule is off, his eating schedule is off, his pooping schedule if off and his seizures are off. We have also increased his dose again of the Felbatol. Another fun thing of late is the addition of blood in his urine. The urologist, Dr. Austin, believes it is related to the recent back up in the bowels. Apparently it is not uncommon that the bowel and bladder suffer retention issues together. He did an ultra sound of Lucas' bladder and found everything looking great. He has had no symptoms of infection, so we are keeping our eyes on him and working to get over the constipation. If it doesn't resolve itself as the bowel back up is resolved then we will see Dr. Austin again in a couple of weeks. Things are still healing in there and it is understandable that there is a great sensitivity to pressure from the back side. :)
Considering all the changes Lucas has been experiencing recently, he is, as usual, doing remarkably well. He is joyful and loving and wonderful. He continues to be fabulous with Eliana. She gets a kick out of his squeals and gargles and he is sweet and tender with her. He gets quiet and concerned when she gets upset. She is getting bigger and stronger all the time. She's at least doubled her birth weight already and not stopping there. She had her first round of immunizations on Lucas' first day of school and was a true champ.
It is amazing to me that in spite of what a rotten person I have been at so many times in my life that God would still bless me so richly. I have a husband who loves me and still thinks I'm beautiful, even sexy, with 20+ pounds on me that needs to come off and these two amazing children who have such lovely temperaments... I can only gush with thankfulness. I know I am undeserving, but eternally thankful that God chooses to give good things anyway, just because He loves us. :)
I pray you recognize His love today and thank you for keeping up with us in spite of the fact that I am so not good at keeping up with all of you. Blessings dear friends and strangers. :)
