Thursday, July 14, 2011

No More Apologies

A dear friend of mine in high school used to say, "If you were sorry, you wouldn't have done it." (What's up, Ashlee!?!) While this statement certainly does not apply, I believe, to a plethora of circumstances, I do think it is appropriate for my continued lack of regular updating on this blog. While I think it would be fantastic if I suddenly found myself capable to keep you all consistently and frequently informed as to the life and times of my beloved son, I don't foresee much changing in my life that would cause this. I have no interest in spending less time with my family and already walk the line of being ridiculously behind on house work. In conclusion, I have decided to stop apologizing every update and save my words for what's important. It'll also be nice to not have the weight of guilt on my head, it might make me feel more free to write more frequently (but don't count on it). :)

Since my last post, there have been several things worth mentioning. As for the seizures, for that is where I left you last, they were only briefly (extremely briefly) improved. We adjusted the shunt flow valve again and saw no change. We adjusted his meds and adjusted his meds again and things were getting worse. We are now in the midst of attempting a transition to a new med. It is a slow process. We are already over two months into it and are only at about 15% of the goal dose. We have not yet noticed much significant improvement, but it's still too early in the process to make any calls about success probability.

Lucas also finished off his first year of preschool including a five week extension into the summer. He has accomplished some incredible things. He is getting stronger in most every area and we are immeasurably proud of him. He is also getting bigger and taller all the time. He just turned 4 on May 14th, but he is wearing a size 5. He is an amazing moose. That's what we call him, "Moose". He is in the 75-90% for his height. Thankfully, he still only weighs about 35 pounds. :)

I can hardly believe it's been so long that I've updated that I am typing about how he is starting his second year of school in a week and a half in the paragraph immediately following the recap of the end of his first year. He will have the same team of teachers and therapists this school year as last with the exception of his vision therapist. Steve retired and we will meet the new Lady/Gent soon. We are excited about all that Lucas will accomplish this year, especially in light of all that he has conquered/begun to conquer over the past year. :)

I need to get dinner going and Eliana is trying to smash the computer, so I"m going to sum up quickly by saying that we just got back from vacation on Grand Cayman Island and it was too short. We went with my cousin and her family and had a wonderful time. There are pictures below of the vacation and some other stuff that has happened in recent months. Also, Eliana has begun walking. She took her first steps the Saturday following her Wednesday birthday, but is now, at thirteen and a half months old, finished with crawling all together and is walking all over (unless she's being carried. She still likes that a lot too. :)) The final bit of news is that Lucas is having surgery tomorrow. It is the final closing of the extra dribble whole in his pee path. The dentist is also going to come in while he's under anesthesia and do his dental cleaning and x-rays. It shouldn't be a long day and it will hopefully be his last surgery until he needs an extension on his shunt tubing (which is supposed to last until he's around 5' tall). I'll try to get something up to let you all know that he's all well and good post-op. :)

Eliana's now crying, so I'm off! Blessings to you all! Thanks for putting up with me and loving our amazing Lucas!

April 2011



May 2011


June 2011


New York Trip - June 2011


Grand Cayman 2011