I talked to the neurologist's office again today and, after reporting that Lucas has had a definite decrease in seizures (sz) (this past Saturday we didn't see a single one!!!), I was instructed to again increase his Keppra, 2mL in the morning and 3mL in the evening for a week and then 3mL twice a day. Also, I was instructed to decrease his Tegretol (carbamazepine)- the one he's been taking since the sz first began last fall. We'll go down from 3mL three times a day to 2mL for a week, then 1mL three times a day for a week and then NO MORE TEGRETOL!!! I think after this next increase of Keppra, even before we finish the first week of only once daily increased dose, we will see no more seizures and that means NO MORE KLONIPIN!!! (the tab we give if he has more than one sz a day or a sz lasting longer than 5 minutes). We'll be down to only one med and that is super exciting to me. (It's the little things, you know?) :)
In other news, Lucas is getting over a cold. He had a super fever (I took it at 104.3 ferenheit at it's highest) and now that his fever is gone, he has a rash all over. It is a pretty common occurance, some reaction after a high fever breaks. It doesn't bother him at all; he's just got little red sposts on his torso, neck and upper arms. He still has some snot pouring out of his head too, but not near as much as a few days ago. This boy is such a trooper.
Anyway, groceries don't select, purchase and transport to my house on their own, so I'm off. Thank you for your prayers. All the glory is God's. We know that Lucas is never out of His sight, thoughts or delight. :)
Blessings!
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