Trip to NYC

We took Lucas to NYC for a few days to hang out with family. On the trip, Lucas got to visit the beach for the first time. He loved playing in the sand, but the water was a bit too cold for him. He also got to eat some of Grandma Anna's gnocchi, which Esther mixed with peas and hamburger - and he seemed to like it a lot.

Lucas also had his last dose of Tegretol while we were there, and is now down to two medicines (Keppra and Klonopin) for seizure control. The trip threw his schedule off a bit, so he was having some high seizure counts during the first few days (15-20 per day), but his schedule has gotten back to normal over the past few days and he is having less seizures.

Trip to NY - August 2008

Anywhere

We have a running joke about how Lucas can fall asleep anywhere, doing anything. He has done it countless times in the middle of therapy. He does it eating on a regular basis. If he's tired, that's it; he's out. Tuesday, one of his therapist laughingly asked if he had yet fallen asleep in his stander. "No" was my answer. Then, Wednesday, my answer changed. I added a few pics of it and a few others. Hope you enjoy. :)

August 2008

Our Big Boy

Yesterday Lucas had his 15 month check up and the last round of 2 different shots. He weighed in at 22.2 pounds and measured 32 1/2 inches tall. He is almost as high as my hip. If he were standing next to me and I were to place my hand on his head, I would have to bend my arm. He's such a big boy!

He is still doing really well in his stander. He only fusses when we have him tilted back to put him in it and take him out of it. He is up to about 20-25 minutes now and doesn't seem to mind at all. We will continue increasing his time in it up to, probably, about an hour and a half a day, though the time will be divided. An hour and a half solid is way too long for a little guy to spend on his feet, even if he is a really big little guy. :)

We'll be adding some more pictures soon including some of Lucas in his stander with the tray attached so he can play with his toys while in it. (So far, he seems to prefer his mommy sitting with him and talking and sharing some yogurt to playing with his dinosaurs though. I think it's the fact that he is up so high and we can be so close, face-to-face, without straining or tilting our heads.)

Time to put him down for a nap and cut the grass!

Blessings!

Standing Tall

Today Lucas had his experience in his new stander. A stander is just what it sounds like it would be; it helps you stand, like a walker helps support you when walking. We will have him about 10-15 minutes/day in it and then, as he gets stronger, we will increase his time spent in it. He did about 10 minutes in it today and hardly complained. Here are a few pictures and a few others we've taken this month so far.

Blessings!

August 2008

One Up, Another Down

I talked to the neurologist's office again today and, after reporting that Lucas has had a definite decrease in seizures (sz) (this past Saturday we didn't see a single one!!!), I was instructed to again increase his Keppra, 2mL in the morning and 3mL in the evening for a week and then 3mL twice a day. Also, I was instructed to decrease his Tegretol (carbamazepine)- the one he's been taking since the sz first began last fall. We'll go down from 3mL three times a day to 2mL for a week, then 1mL three times a day for a week and then NO MORE TEGRETOL!!! I think after this next increase of Keppra, even before we finish the first week of only once daily increased dose, we will see no more seizures and that means NO MORE KLONIPIN!!! (the tab we give if he has more than one sz a day or a sz lasting longer than 5 minutes). We'll be down to only one med and that is super exciting to me. (It's the little things, you know?) :)

In other news, Lucas is getting over a cold. He had a super fever (I took it at 104.3 ferenheit at it's highest) and now that his fever is gone, he has a rash all over. It is a pretty common occurance, some reaction after a high fever breaks. It doesn't bother him at all; he's just got little red sposts on his torso, neck and upper arms. He still has some snot pouring out of his head too, but not near as much as a few days ago. This boy is such a trooper.

Anyway, groceries don't select, purchase and transport to my house on their own, so I'm off. Thank you for your prayers. All the glory is God's. We know that Lucas is never out of His sight, thoughts or delight. :)

Blessings!