We talked with Dr. Burris' office on Tuesday and, Praise the Lord, Lucas' blood work came back looking good! :) I said that the seizure count had been averaging lower and he gave the "OK" to begin weaning Lucas off the Keppra. We dropped him by one tablet that day and in ten days. we'll drop another tablet and ten days after that, he will be off the Keppra entirely. He also said that he wants us to increase the Depakote by one tablet per day. So he now gets two of those twice a day and one Keppra twice a day. He's such a trooper swallowing those pills. Our little champ. :)
For whatever reason, Monday night, Lucas had a rough time getting to sleep (this is before any med changes). He then ended up waking at about 0430 Tuesday morning and struggled to get back to sleep because he kept having seizures startle him awake. He had a whole lot that day, repeated the struggle with sleep Tuesday night and Wednesday night and woke super early both Wednesday and Thursday. He had increasing numbers of seizures each progressing day as well. Yesterday, he napped well and went to sleep well. He woke about an hour-hour and a half after going to sleep and so I brought him into our bed for the night. He slept the whole night, until 0630 this morning. His seizure count has been much lower today too. He's around 50-55 now, just before 6pm. Yesterday, he had had as many by 0700. Needless to say, despite lengthy sleep deprivation, I am elated and have felt wonderful all day. :)
I need to get some dinner in my fellows now. Will update again soon.
Blessings!
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