After trying the Canadian seizure meds for a few months, we've noticed that not only does Lucas seem to be having MORE seizures than before - but he also hasn't been saying words (Da Da, Ma Ma) like he was before. So Esther called the neurologist today and he agreed to take him off of the medication. Like all seizure meds, we need to ease him off of it. So it will be about a week before he's completely off of the Canadian drugs.
The doctors still seem confused about how to best handle Lucas' seizures. He is still taking Keppra - which is the medicine that kept him seizure free for the first few months he was on it. So we are planning on bringing Lucas in for a 24 hour evaulation at STL Children's Hospital where he will be hooked up to an EEG so that they will be able to monitor his brain while it is seizing (and hopefully will learn how to stop it from happening). We haven't heard back about when this will happen, but it should be within the next few weeks.
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