So, now that Lucas is feeling better (he's had an ear infection and snotty nose), we are seeing the wonderfulness of a lack of seizures!!!!! He came down with sickness right after his dose went up again and the seizures did not decrease, in severity they did, but in frequency, they actually increased a bit. This is very common with illness, however, so we waited to see how it would be once he started feeling better. He is still a little snotty and still on antibiotics, but he is hardly having any seizure activity at all!
He has had 1-4 tiny eye twitching only seizures (no head movement, no arm movement, no leg movement) every day since Monday, and on Wednesday, we finally got to cease the Klonapin (which we are supposed to give if he has multiple seizures or seizures lasting longer than 5 minutes)!! Dr. Burris said that if he keeps this up for the next two weeks, we can schedule his surgery!
Yeah God!! We are so thankful! I need to get him now; he just woke from a nap. I wanted to let you all know and say thank you again for your prayers, your faith, your love and your encouragement. We continue to press on and celebrate the life of our amazing gift, our sweet son Lucas. :)
Love and blessings to you all!
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