Total Annihilation

That's what we want.

Lucas' seizures are almost all gone, but he's still been having the slight deviation of his eyes to the left. It mostly only happens within about an hour of his next dose of Keppra, so instead of waiting 2 weeks to call the doctor, I called this past Tuesday. He said that he would like us to up the dose one more time so that we can be completely rid of the seizures. After 2 weeks in the total clear, we should be able to schedule his eye surgery which will also include the repair of the opening left after his hypospadias correction last November. Then we should have no more drifting eye and no more dribbling pee. :)

In physical therapy news, yesterday, Karey (his PT) said that he is progressing so well since starting in his stander that she wants us to start thinking about getting him into a walker. If the state has one then we can get it more quickly, but if we have to order it, it usually takes about 4-6 months before we will actually get it. It looks like we are going to skip the crawling and move right into walking, but we won't be complaining. :) I don't have any details about that, but it is an exciting something to look forward to enjoying and I figure we can go ahead and start celebrating early. :)

Pray you all are well and blessed!

Hopefully we'll be scheduling soon!

So, now that Lucas is feeling better (he's had an ear infection and snotty nose), we are seeing the wonderfulness of a lack of seizures!!!!! He came down with sickness right after his dose went up again and the seizures did not decrease, in severity they did, but in frequency, they actually increased a bit. This is very common with illness, however, so we waited to see how it would be once he started feeling better. He is still a little snotty and still on antibiotics, but he is hardly having any seizure activity at all!

He has had 1-4 tiny eye twitching only seizures (no head movement, no arm movement, no leg movement) every day since Monday, and on Wednesday, we finally got to cease the Klonapin (which we are supposed to give if he has multiple seizures or seizures lasting longer than 5 minutes)!! Dr. Burris said that if he keeps this up for the next two weeks, we can schedule his surgery!

Yeah God!! We are so thankful! I need to get him now; he just woke from a nap. I wanted to let you all know and say thank you again for your prayers, your faith, your love and your encouragement. We continue to press on and celebrate the life of our amazing gift, our sweet son Lucas. :)

Love and blessings to you all!

Sorry It's Been A While

So the seizures have continued and about 2 weeks ago we increased Lucas' dose of Keppra again. He is now taking 4mL twice a day. Tomorrow, we are supposed to call and check in with Dr. Burris (the neurologist) again. I am not sure what he will say though because Lucas has still be having seizures even with the dose increase. This, however, may be related to an ear infection and snotty nose that Lucas developed Wednesday night. When one is ill, it is often the case that seizure activity can increase.

He is doing a bit better today. (We started antibiotics on Friday.) His cough is much less frequent and severe and his snotty nose is not as snotty. He also is behaving more normally and not so ill-ish. I'll let you know what develops. (Hopefully it won't take me as long between updates as it has this time.)

In other exciting news, last week in physical therapy, Lucas sat by himself for about 20 seconds! He sat about 15 seconds another time in the same session. He is getting stronger and beginning to grow in his balance and coordination. He has also been doing great standing while we hold him under his arms and will even take steps as we support him.

I need to get some stuff done now, but I'll try to keep you posted when there's more to say.

Thank you all for your prayers and love and encouragement. Lucas, our amazing little prince, (and his parents) appreciate them more than we can say.