Up, Up and Away!

Sorry I didn't get this up sooner. I am hardly online. :/

Anyway, here's the latest:

We increased Lucas' evening dose from 25mg to 50mg as of Monday. This coming Monday we will increase his morning dose as well. We also, this coming Monday, have an appointment with Dr. Burris. So far, it seems like the medication is helping to improve matters, but if Lucas' sleep schedule is disturbed, the seizures increase. It is a more severe observation the more consecutively the schedule is upset. Consequently, however, the opposite is also true; with consecutive excellence in sleep, there is a dramatic drop in seizure activity.

This is helpful to know and we are hopeful that a combination of the medication and keeping him well rested (along with the amazing grace of God!), the seizures will cease to be a part of our lives. The only difficult matter is this: Lucas takes a long nap in the middle of the day (the middle of our day, that is), around 11 or 12 until around 2 or 3, give or take a half hour. Without disturbing his sleep, it is near impossible for me to get out of the house for errands, so I am slack in that department temporarily, a slight annoyance.

Otherwise, all is well. I need to get some dinner in him now, as it is already 10 past when I should have begun his meal!

Blessings!