Lucas has been doing great. There haven't been any seizures since he's been at his full dose of Tegratol. He still really really REALLY hates his medicine, and will use his loudest scream possible when his medicine gets within view. We finally have an "official" neurologist - and we had our first appt with him last week. He said that once Lucas starts eating real food, we can give Lucas his medicine in a pill that we can mix up with the food. We plan to start feeding him soft foods next week (he will be 6 months this Wednesday!!), so hopefully Lucas takes a liking to food quickly and we can stop giving him this nasty liquid!
Besides that, the neurologist explained a few things to us about his brain that was in the MRI report that the Carter center did for us (the one that said that he doesn't have holoprosencephaly). Basically, Lucas' brain has not formed the way most brains do. When we're forming in our mother's womb - our brain divides into two lobes, and many of the structures within the brain divide symmetrically along the division of the lobe. In Lucas' brain - many of these structures didn't divide, and he is missing a part of the brain called the corpus callosom - which is the largest white matter section of the brain. We don't have any answers as to why these things might have happened, or what it will mean for Lucas. But we believe that Lucas is fantastic, and will continue to amaze us and his doctors.
Lucas has been getting a lot better with his head control, and seems to be starting to develop his laugh. Right now, it doesn't sound like much of a laugh - but it always makes daddy and mommy laugh :-)
Here are some recent pictures:
Lucas October / November |
No comments:
Post a Comment