Last month we sent Lucas' MRI over to the Carter Centers, which are a group of hospitals that specialize in holoprosencephaly. Since the neuroradiologists at St Louis Children's hospital could not determine what type of holoprosencephaly Lucas has, we figured that the Carter Centers evaluation would help us know a bit more about Lucas' brain. The summary of their report was:
In reviewing your child’s MRI, we did not see any areas that are abnormally connected across the middle; therefore your child does not meet the criteria for the diagnosis of holoprosencephaly.
So Lucas doesn't have holoprosencephaly at all!
The report did mention other brain disorders, but it wasn't clear whether they were diagnoses or just possible diagnoses. So the next step would be to go to a neurologist who would be able to help us translate the report into English.
Regardless of what the doctors say, Lucas continues to be awesome. He is behind in his eye tracking and his head movement, but everything else seems to be great!
2 comments:
Yeah little Lucas!!!! You are a superhero!!! God will catch that eye tracking and head movement up in His timing!
Gooooo, LUCAS!!! Tell your mom and dad that we love the photo montage they sent us.
Keep up the progress, you little man!
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