I just read an article on CNN called Five diagnoses that call for a second opinion, in which diagnosis number 3 is "Pregnancy termination for fetal abnormality". While Esther was pregnant with Lucas, we went through at least 5 ultrasounds and 1 fetal MRI. Besides Dr. Brondz (Esther's OB - who was fantastic), we spoke with 2 different doctors and a genetic counselor. These doctors stressed how devastating Lucas' diagnosis was and brought up the option to terminate. Esther and I made it clear that this was not something we were willing to consider.
We understand very clearly the serious nature of Lucas' diagnosis. But today, almost 9 months after learning what holoprosencephaly is, we are able to spend our days with a beautiful, happy, intelligent baby boy - and we love it so much. Lucas is doing so many things that the doctors said he would never be able to do, and besides having a shunt and a big head which he can't move around so well - you would never know anything was wrong with him.
While Esther was pregnant, we heard many similar stories from parents who were given horrible prenatal diagnoses only to find out that their babies were fine. I think this happens more than most people realize. And if anybody who reads this is faced with this situation, I ask that you remember Lucas and remember to put your faith in God before you decide that your doctor knows anything at all.
1 comment:
Lucas is amazing- we love learning about him.
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