Just a quick word to y'all...
I spoke with Lucas' neurologist, Dr. Burris, and we are going to increase the Keppra a bit. He wants to take things pretty slowly and carefully, but thus far, things have been much better than they were three weeks ago. Lucas is averaging 0-5 clusters a day of 2-8 seizures in each and about 20-30 individual seizures. We have an appointment on March 26th at Children's Hospital Epilepsy Center with Dr. R. We'll see what he/she (I'm not sure which) has to say.
In other news, we have Lucas' IEP (individualized education program) meeting this Friday. This is a meeting attended by all his current team, two possible teams for next school year and a bunch of others. There are two possible locations for Lucas next year, one is a regular elementary school with a small separate special ed (SpEd)class and one is an all SpEd school. I recently toured them both with my new and fabulous friend Deborah whose daughter goes to school with Lucas and will also be starting kindergarten in the fall. I had high hopes to love the regular elementary school, but ended up feeling no excitement whatsoever. The all SpEd school was the one that really warmed my heart and it is where we are hoping to send him. I am hoping the decision will be made in the meeting on Friday so that we can go ahead and settle into it. It is based on the amount of time determined that he needs in therapy and on the opinions of his current team and, we've been told, us parentals. I will try to get back on here soon after the meeting to let y'all know the conclusion.
For now, I am off to make lunch and feed the handsomest boy I know. :) Love and blessings and thanks to all of you!
